HİDRADENİTİS SÜPÜRATİVA TANILI HASTANIN JOANNE R. DUFFY’ NİN KALİTELİ BAKIM KURAMINA GÖRE BAKIMI: OLGU SUNUMU
Yıl 2025,
Cilt: 5 Sayı: 1, 133 - 144, 30.04.2025
Melis Merve Cetınkaya
,
Havvane Kulaksızoğlu
,
Fatma Eti Aslan
,
Babek Tabandeh
,
Ramazan Dönmez
Öz
Hidradenitis Süpürativa kıl folikülleri ve/veya ter bezlerinden kaynaklanan hastalık olarak tanımlanır. Vücutta genellikle anüs çevresi, koltuk altı, meme dokusu, genital bölge, kasık ve skrotumda görülür. HS’ de ağrı, akıntı, koku ve kaşıntı en sık görülen belirtilerdir. Hastaların yaşam kalitesini önemli derecede etkileyen, tedavisi uzun süren kronik bir hastalıktır. Hemşirelik kuramları hemşirelik uygulamalarına yol göstererek bakım kalitesini arttırmaya yardımcı olmaktadır. Kaliteli Bakım Kuramında hemşirenin rolü diğer sağlık profesyonelleri ile iletişime geçerek iyileşme sürecinde hasta ve ailesine destek olmak, önem verildikleri hissini uyandırmaktır. Bu olgu sunumunda Hidradenitis Süpürativa tanılı 43 yaşındaki erkek hastanın Joanne R. Duffy’nin Kaliteli Bakım Kuramı ile tedavi ve bakım sürecinin incelenmesi amaçlandı.
Etik Beyan
Yazarlar arasında çıkar çatışması bulunmamaktadır.
Kaynakça
- Amat-Samaranch, V., Agut-Busquet, E., Vilarrasa, E., & Puig, L. (2021). New perspectives on the treatment of hidradenitis suppurativa. Therapeutic Advances in Chronic Disease. 12. https://doi.org/10.1177/20406223211055920.
- Alotaibi, H.M. (2023). Incidence, Risk Factors, and Prognosis of Hidradenitis Suppurativa Across the Globe: Insights from the Literature. Clin Cosmet Investig Dermatol. 16, 545-552. https://doi.org/10.2147/CCID.S402453.
- Ataman Yıldız, G., & Eti Aslan, F. (2023). Nursing Approach to the Patient with Left Ventricular Assist Device According to the Health Promotion Model: Case Report. BAU Health Innov.1(2),101–104. https://doi.org/10.14744/bauh.2024.70288.
- Borlu, M., Alpsoy, E., Atakan, N., Başkan, E.B., Engin, B., Özçınar, B., Özgür, F.F., & Çakmakçı, M. (2021). Türkiye Hidradenitis Süpürativa tanı ve tedavi kılavuzu. Türkiye Klinikleri Dermatoloji Dergisi. 31(1), 57-80. https://doi.org/10.5336/dermato.2020-80699.
- Çoban, N., Gezginci, E., & Göktaş, S. (2019). Amputasyon bakımında Abdellah’ın modelinin kullanımı: olgu sunumu. Sağlık Bilimleri Dergisi Hemşirelik Dergisi. 1(3), 249-256.
- Duffy, J.R. (2002). The Caring Assessment Tool Admversion. In: J. Watson (Ed.), Instruments for assessing and measuring caring in nursing and health sciences. New York: Springer.
- Duffy, J. (2010). Joanne Duffy’s Quality Caring Model. Parker, M.E., & Smith, M.C. (Eds.). İçinde: Nursing Theories, Nursing Practice. Davis Company, Philadelphia. Third edition, 402-416.
- Duffy, J.R., & Hoskins, L. (2003). The Quality Caring Model: Blending Dual Paradigms. Advances in Nursing Science. 26(1), 77–88. https://doi.org/10.1097/00012272-200301000-00010.
- Duffy, J.R. (2009). Quality caring in nursing: applying theory to clinical practice, education, and leadership. New York: Springer.
- Duffy, J.R., Culp, S., & Padrutt, T. (2018). Description and Factors Associated With Missed Nursing Care in an Acute Care Community Hospital. The Journal of Nursing Administration. 7(8), 361-367. https://doi.org/10.1097/NNA.0000000000000630
- Duffy, J.R., Hoskins, L., & Seifert, R.F. (2007). Dimensions of Caring Psychometric Evaluation of the Caring Assessment Tool. Advances in Nursing Science. 30(3), 235-245. https://doi.org/10.1097/01.ANS.0000286622.84763.a9
- Gierek, M., Labus, W., Slabon, A., Ziolkowska, K., Ochala-Gierek, G., Kitala, D., & Szyluk, K. (2022). Co-Graft of acellular dermal matrix and split thickness skin graft-a new reconstructive surgical method in the treatment of hidradenitis suppurativa. Bioengineering. 9, 389. https://doi.org/10.3390/bioengineering9080389.
- Goldburg, S.R., Strober, B.E., & Payette, M.J. (2020). Hidradenitis suppurativa: Epidemiology, clinical presentation, and pathogenesis. Journal of the American Academy of Dermatology. 82(5), 1045-1058. https://doi.org/10.1016/j.jaad.2019.08.090
- Ingram, J.R., Abbott,R., Ghazavi, M., Alexandroff, A.B., McPhee, M., Burton, T., & Clarke, T. (2014). The Hidradenitis Suppurativa Priority Setting Partnership. British Journal of Dermatology. 171(6), 1422–1427. https://doi.org/10.1111/bjd.13163.
- Karaca, A., & Durna, Z. (2018). Hemşirelik Bakım Kalitesi ve İlişkili Faktörler. Sağlık ve Toplum Dergisi, 28(2), 16-23.
- Koç, Z., Keskin Kızıltepe, S., Çınarlı, T., & Şener, A. (2017). Hemşirelik uygulamalarında, araştırmalarında, yönetiminde ve eğitiminde kuramların kullanımı. Hemşirelikte Eğitim ve Araştırma Dergisi.14 (1), 62-72. https://doi.org/10.5222/HEAD.2017.062.
- Nguyen, T.V., Damiani, G., Orenstein, L.A.V., Hamzavi, I., & Jemec, G.B. (2021). Hidradenitis suppurativa: an update on epidemiology, phenotypes, diagnosis, pathogenesis, comorbidities and quality of life. J Eur Acad Dermatol Venereol. 35(1), 50-61. https://doi.org/10.1111/jdv.16677.
- Matusiak, Ł., Andrzej, B., & Szepietowski, J.C. (2010). Hidradenitis suppurativa markedly decreases quality of life and professional activity. Journal of the American Academy of Dermatology. 62(4),706-708. https://doi.org/10.1016/j.jaad.2009.09.021.
- Moghadari Koosha, M., Borzou, S.R., Khatiban, M., & Cheraghi, F. (2022). Nursing Process Based on Orem’s Self-Care Deficit Nursing Theory in Patient with Acute Myeloid Leukemia: Case Report. Journal of Nursing Education (JNE). 11(6) ,1-10. https://doi.org/10.22034/JNE.11.6.1.
- Sabat, R., Jemec, G.B.E., Matusiak,L., Kimball, A.B., Prens, E., & Wolk, K.(2020). Hidradenitis Suppurativa. Nature Reviews Disease Primers. 6(18). https://doi.org/10.1038/s41572-020-0149-1.
- Scala, E., Cacciapuoti, S., Garzorz-Stark, N., Megna, M., Marasca, C., Seiringer, P., Volz ,T., Eyerich , K., Fabbrocini, G., van Straalen, K.R., Prens, E.P., & Gudjonsson, J.E. (2022). Insights into hidradenitis suppurativa. J Allergy Clin Immunol. 149(4), 1150-1161. https://doi.org/10.1016/j.jaci.2022.02.003
- Theut Riis, P., Thorlacius, L., Knudsen List, E., & Jemec, G.B.E. (2017). A pilot study of unemployment in patients with hidradenitis suppurativa in Denmark. British Journal of Dermatology.176(4), 1083-1085. https://doi.org/10.1111/bjd.14922.
- Tchero, H., Herlin, C., Bekara, F., Fluieraru, S., & Teot, L. (2019) Hidradenitis Suppurativa: A Systematic Review and Meta-analysis of Therapeutic Interventions. Indian J Dermatol Venereol Leprol. 85(3), 248-257. https://doi.org/10.4103/ijdvl.IJDVL_69_18
- Toyin, M.K. & Awodiya, M.O. (2016). Case study report of Master A.A. with osteomyelitis and pathological fracture. South American Journal of Nursing. Special Edition,1-12.
- Vossen, A.R.J.V., van der Zee, H.H., & Prens E.P. (2018). Hidradenitis Suppurativa: A systematic review ıntegrating inflammatory pathways into a cohesive pathogenic model. Front. Immunol. 9,2965. https://doi.org/10.3389/fimmu.2018.02965
- Weir, S.A., Roman, B., Jiminez, V., Burns, M., Sanyi, A., Elewski, B., & Mayo, T. (2023). Hidradenitis Suppurativa and five key vitamins and minerals. Skin Appendage Disorders. 9,153-159. https://doi.org/10.1159/000528122
- Willems, D., Hiligsmann, M., van der Zee, H.H., Sayed, C.J., & Evers, S.M.A.A. (2022). Identifying Unmet Care Needs and Important Treatment Attributes in the Management of Hidradenitis Suppurativa: A Qualitative Interview Study. Patient. 15(2),207-218. https://doi.org/10.1007/s40271-021-00539-7.
- Wolkenstein, P., Loundou, A., Barrau, K., Auquier, P., & Revuz, J. (2007). Quality of life impairment in hidradenitis suppurativa: A study of 61 case.Journal of the American Academy of Dermatology. 56(4), 621-623. https://doi.org/10.1016/j.jaad.2006.08.061.
- Younas, A., ve Quennell, S. (2019). Usefulness of nursing theory-guided practise: an integrative review. Scandinavian Journal of Caring Sciences. 33(3), 540-555. https://doi.org/10.1111/scs.12670
CARE OF A PATIENT DIAGNOSED WITH HYRDRADENITIS SUPPURATIVA ACCORDING TO JOANNE R. DUFFY'S QUALITY CARE THEORY: CASE REPORT
Yıl 2025,
Cilt: 5 Sayı: 1, 133 - 144, 30.04.2025
Melis Merve Cetınkaya
,
Havvane Kulaksızoğlu
,
Fatma Eti Aslan
,
Babek Tabandeh
,
Ramazan Dönmez
Öz
Hidradenitis suppurativa is defined as a disease caused by hair follicles and/or sweat glands. It is usually seen around the anus, axilla, breast tissue, genital area, groin and scrotum. Pain, discharge, odor and itching are the most common symptoms in HS. It is a long-lasting chronic disease that significantly affects the quality of life of patients. Nursing theories help to improve the quality of care by guiding nursing practices. The role of the nurse in the Quality Care Theory is to support the patient and family in the healing process by communicating with other health professionals and to make them feel cared for. In this case report, it was aimed to examine the treatment and care process of a 43-year-old male patient diagnosed with Hidradenitis Suppurativa with Joanne R. Duffy's Quality Care Theory.
Kaynakça
- Amat-Samaranch, V., Agut-Busquet, E., Vilarrasa, E., & Puig, L. (2021). New perspectives on the treatment of hidradenitis suppurativa. Therapeutic Advances in Chronic Disease. 12. https://doi.org/10.1177/20406223211055920.
- Alotaibi, H.M. (2023). Incidence, Risk Factors, and Prognosis of Hidradenitis Suppurativa Across the Globe: Insights from the Literature. Clin Cosmet Investig Dermatol. 16, 545-552. https://doi.org/10.2147/CCID.S402453.
- Ataman Yıldız, G., & Eti Aslan, F. (2023). Nursing Approach to the Patient with Left Ventricular Assist Device According to the Health Promotion Model: Case Report. BAU Health Innov.1(2),101–104. https://doi.org/10.14744/bauh.2024.70288.
- Borlu, M., Alpsoy, E., Atakan, N., Başkan, E.B., Engin, B., Özçınar, B., Özgür, F.F., & Çakmakçı, M. (2021). Türkiye Hidradenitis Süpürativa tanı ve tedavi kılavuzu. Türkiye Klinikleri Dermatoloji Dergisi. 31(1), 57-80. https://doi.org/10.5336/dermato.2020-80699.
- Çoban, N., Gezginci, E., & Göktaş, S. (2019). Amputasyon bakımında Abdellah’ın modelinin kullanımı: olgu sunumu. Sağlık Bilimleri Dergisi Hemşirelik Dergisi. 1(3), 249-256.
- Duffy, J.R. (2002). The Caring Assessment Tool Admversion. In: J. Watson (Ed.), Instruments for assessing and measuring caring in nursing and health sciences. New York: Springer.
- Duffy, J. (2010). Joanne Duffy’s Quality Caring Model. Parker, M.E., & Smith, M.C. (Eds.). İçinde: Nursing Theories, Nursing Practice. Davis Company, Philadelphia. Third edition, 402-416.
- Duffy, J.R., & Hoskins, L. (2003). The Quality Caring Model: Blending Dual Paradigms. Advances in Nursing Science. 26(1), 77–88. https://doi.org/10.1097/00012272-200301000-00010.
- Duffy, J.R. (2009). Quality caring in nursing: applying theory to clinical practice, education, and leadership. New York: Springer.
- Duffy, J.R., Culp, S., & Padrutt, T. (2018). Description and Factors Associated With Missed Nursing Care in an Acute Care Community Hospital. The Journal of Nursing Administration. 7(8), 361-367. https://doi.org/10.1097/NNA.0000000000000630
- Duffy, J.R., Hoskins, L., & Seifert, R.F. (2007). Dimensions of Caring Psychometric Evaluation of the Caring Assessment Tool. Advances in Nursing Science. 30(3), 235-245. https://doi.org/10.1097/01.ANS.0000286622.84763.a9
- Gierek, M., Labus, W., Slabon, A., Ziolkowska, K., Ochala-Gierek, G., Kitala, D., & Szyluk, K. (2022). Co-Graft of acellular dermal matrix and split thickness skin graft-a new reconstructive surgical method in the treatment of hidradenitis suppurativa. Bioengineering. 9, 389. https://doi.org/10.3390/bioengineering9080389.
- Goldburg, S.R., Strober, B.E., & Payette, M.J. (2020). Hidradenitis suppurativa: Epidemiology, clinical presentation, and pathogenesis. Journal of the American Academy of Dermatology. 82(5), 1045-1058. https://doi.org/10.1016/j.jaad.2019.08.090
- Ingram, J.R., Abbott,R., Ghazavi, M., Alexandroff, A.B., McPhee, M., Burton, T., & Clarke, T. (2014). The Hidradenitis Suppurativa Priority Setting Partnership. British Journal of Dermatology. 171(6), 1422–1427. https://doi.org/10.1111/bjd.13163.
- Karaca, A., & Durna, Z. (2018). Hemşirelik Bakım Kalitesi ve İlişkili Faktörler. Sağlık ve Toplum Dergisi, 28(2), 16-23.
- Koç, Z., Keskin Kızıltepe, S., Çınarlı, T., & Şener, A. (2017). Hemşirelik uygulamalarında, araştırmalarında, yönetiminde ve eğitiminde kuramların kullanımı. Hemşirelikte Eğitim ve Araştırma Dergisi.14 (1), 62-72. https://doi.org/10.5222/HEAD.2017.062.
- Nguyen, T.V., Damiani, G., Orenstein, L.A.V., Hamzavi, I., & Jemec, G.B. (2021). Hidradenitis suppurativa: an update on epidemiology, phenotypes, diagnosis, pathogenesis, comorbidities and quality of life. J Eur Acad Dermatol Venereol. 35(1), 50-61. https://doi.org/10.1111/jdv.16677.
- Matusiak, Ł., Andrzej, B., & Szepietowski, J.C. (2010). Hidradenitis suppurativa markedly decreases quality of life and professional activity. Journal of the American Academy of Dermatology. 62(4),706-708. https://doi.org/10.1016/j.jaad.2009.09.021.
- Moghadari Koosha, M., Borzou, S.R., Khatiban, M., & Cheraghi, F. (2022). Nursing Process Based on Orem’s Self-Care Deficit Nursing Theory in Patient with Acute Myeloid Leukemia: Case Report. Journal of Nursing Education (JNE). 11(6) ,1-10. https://doi.org/10.22034/JNE.11.6.1.
- Sabat, R., Jemec, G.B.E., Matusiak,L., Kimball, A.B., Prens, E., & Wolk, K.(2020). Hidradenitis Suppurativa. Nature Reviews Disease Primers. 6(18). https://doi.org/10.1038/s41572-020-0149-1.
- Scala, E., Cacciapuoti, S., Garzorz-Stark, N., Megna, M., Marasca, C., Seiringer, P., Volz ,T., Eyerich , K., Fabbrocini, G., van Straalen, K.R., Prens, E.P., & Gudjonsson, J.E. (2022). Insights into hidradenitis suppurativa. J Allergy Clin Immunol. 149(4), 1150-1161. https://doi.org/10.1016/j.jaci.2022.02.003
- Theut Riis, P., Thorlacius, L., Knudsen List, E., & Jemec, G.B.E. (2017). A pilot study of unemployment in patients with hidradenitis suppurativa in Denmark. British Journal of Dermatology.176(4), 1083-1085. https://doi.org/10.1111/bjd.14922.
- Tchero, H., Herlin, C., Bekara, F., Fluieraru, S., & Teot, L. (2019) Hidradenitis Suppurativa: A Systematic Review and Meta-analysis of Therapeutic Interventions. Indian J Dermatol Venereol Leprol. 85(3), 248-257. https://doi.org/10.4103/ijdvl.IJDVL_69_18
- Toyin, M.K. & Awodiya, M.O. (2016). Case study report of Master A.A. with osteomyelitis and pathological fracture. South American Journal of Nursing. Special Edition,1-12.
- Vossen, A.R.J.V., van der Zee, H.H., & Prens E.P. (2018). Hidradenitis Suppurativa: A systematic review ıntegrating inflammatory pathways into a cohesive pathogenic model. Front. Immunol. 9,2965. https://doi.org/10.3389/fimmu.2018.02965
- Weir, S.A., Roman, B., Jiminez, V., Burns, M., Sanyi, A., Elewski, B., & Mayo, T. (2023). Hidradenitis Suppurativa and five key vitamins and minerals. Skin Appendage Disorders. 9,153-159. https://doi.org/10.1159/000528122
- Willems, D., Hiligsmann, M., van der Zee, H.H., Sayed, C.J., & Evers, S.M.A.A. (2022). Identifying Unmet Care Needs and Important Treatment Attributes in the Management of Hidradenitis Suppurativa: A Qualitative Interview Study. Patient. 15(2),207-218. https://doi.org/10.1007/s40271-021-00539-7.
- Wolkenstein, P., Loundou, A., Barrau, K., Auquier, P., & Revuz, J. (2007). Quality of life impairment in hidradenitis suppurativa: A study of 61 case.Journal of the American Academy of Dermatology. 56(4), 621-623. https://doi.org/10.1016/j.jaad.2006.08.061.
- Younas, A., ve Quennell, S. (2019). Usefulness of nursing theory-guided practise: an integrative review. Scandinavian Journal of Caring Sciences. 33(3), 540-555. https://doi.org/10.1111/scs.12670