Araştırma Makalesi
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Chemotherapy Side Effects and Youtube Platform; What do Patients Watch?

Yıl 2025, Cilt: 6 Sayı: 1, 110 - 121, 30.04.2025

Nilay Bektaş Akpınar , Ulviye Özcan Yüce , Assoc. Prof. Cagrı Gumus , Eda Sezerer Albayrak , Esen Mallı

https://doi.org/10.59244/ktokusbd.1638485

Öz

Objective: This study was aimed to evaluate the content, quantity and reliability of YouTube videos in which the side effects of chemotherapy are explained in a country sample.
Materials and Methods: It was searched in the search bar on YouTubeTM on 29 August 2022 using the keyword 'chemotherapy side effects'. 55 videos between 0-20 min were evaluated simultaneously by 3 independent experts using the Quality Criteria for Consumer Health Information (DISCERN) scale and the Global Quality Scale (GQS).
Results: The three most common uploader profiles were physician, patient and health-related website. The most of contents of the videos consisted of general chemotherapy and side effects, patient experiences. The DISCERN score average was 56, and the GQS was 3.00. When the scores of the video uploaders were compared, it was found that there was no significant difference between the scores of DISCERN (p=0.245) and GQS (p=0.647). There was a significant difference between the groups in the video duration, the number of likes and comments, and the rate of comments (p=0.001, 0.049, 0.004, 0.003, respectively).
Conclusion: As a result, the quality of the information in the videos is good and the educational value is moderate. It has been determined that the videos uploaded by the patients are watched more, receive more likes and are viewed more frequently.

Anahtar Kelimeler

cancer chemotherapy side effect e-health patient YouTube

Kaynakça

  • Alexa. (2022). The top 500 sites on the web. Retrieved from https://www.alexa.com/topsites Auxier, B., & Anderson, M. (2021). Social media use in 2021. Pew Research Center. Retrieved from https://www.pewresearch.org/internet/2021/04/07/social-media-use-in-2021/
  • Azer, S. A. (2020). Are DISCERN and JAMA suitable instruments for assessing YouTube videos on thyroid cancer? Journal of Cancer Education, 35, 1267–127. https://doi.org/10.1007/s13187-020
  • Behranvand, N., Nasri, F., Zolfaghari Emameh, R., Khani, P., Hosseini, A., Garssen, J., & Falak, R. (2022). Chemotherapy: A double-edged sword in cancer treatment. Cancer Immunology, Immunotherapy, 71(3), 507-526. https://doi.org/10.1007/s00262-021-03013-3
  • Bernard, A., Langille, M., Hughes, S., Rose, C., Leddin, D., & Veldhuyzen van Zanten, S. A. (2007). A systematic review of patient inflammatory bowel disease information resources on the World Wide Web. The American Journal of Gastroenterology, 102(9), 2070-2077. https://doi.org/10.1111/j.1572-0241.2007.01325.x
  • Biggs, T. C., Bird, J. H., Harries, P. G., & Salib, R. J. (2013). YouTube as a source of information on rhinosinusitis: The good, the bad and the ugly. The Journal of Laryngology & Otology, 127(8), 749-754. https://doi.org/10.1017/S0022215113001473
  • Coolbrandt, A., Dierckx de Casterlé, B., Wildiers, H., Aertgeerts, B., Van der Elst, E., van Achterberg, T., & Milisen, K. (2016). Dealing with chemotherapy-related symptoms at home: A qualitative study in adult patients with cancer. European Journal of Cancer Care (Engl), 25(1), 79-92. https://doi.org/10.1111/ecc.12303
  • Dadkhah, M., Mehraeen, M., Rahimnia, F., & Kimiafar, K. (2021). Use of Internet of Things for chronic disease management: An overview. Journal of Medical Signals and Sensors, 24(2), 138-157. https://doi.org/10.4103/jmss.JMSS_13_20
  • DISCERN—General instructions. (n.d.). Retrieved September 2, 2022, from www.discern.org.uk Guo, P., Kim, J., & Rubin, R. (2014). How video production affects student engagement: An empirical study of MOOC videos. In Proceedings of the first ACM conference on Learning at scale conference (pp. 41-50). https://doi.org/10.1145/2556325.2566239
  • Hassona, Y., Taimeh, D., Marahleh, A., & Scully, C. (2016). YouTube as a source of information on mouth (oral) cancer. Oral Diseases, 22(3), 202-208. https://doi.org/10.1111/odi.12434
  • Kaşıkçı, M. T., & Yıldırım, S. (2021). Analysing YouTube videos as a source for Alzheimer's disease information. Medical Journal of Mugla Sitki Kocman University, 8(3), 215-219. https://doi.org/10.47572/muskutd.1001545
  • Lewandowski, D. (2008). Search engine user behaviour: How can users be guided to quality content? Information Services & Use, 28(3), 261-268. https://doi.org/10.3233/ISU-2008-0583
  • Madathil, K. C., Rivera-Rodriguez, A. J., Greenstein, J. S., & Gramopadhye, A. K. (2015). Healthcare information on YouTube: A systematic review. Health Informatics Journal, 21(3), 173-194. https://doi.org/10.1177/1460458213512220
  • Magalhães, B., Fernandes, C., Lima, L., Martinez-Galiano, J. M., & Santos, C. (2020). Cancer patients' experiences on self-management of chemotherapy treatment-related symptoms: A systematic review and thematic synthesis. European Journal of Oncology Nursing, 49, 101837. https://doi.org/10.1016/j.ejon.2020.101837
  • Osman, W., Mohamed, F., Elhassan, M., & Shoufan, A. (2022). Is YouTube a reliable source of health-related information? A systematic review. BMC Medical Education, 22, 382. https://doi.org/10.1186/s12909-022-03446-z
  • Ozdemir, B., Unubol, O. T., & Akyuz, G. (2022). Is YouTube a high-quality source of information on cancer rehabilitation? Journal of Cancer Survivorship, 16(5), 1016-1022. https://doi.org/10.1007/s11764-021-01093-9
  • Pekmezci, P. H., Köse, G. B., Akbal, Y., Özdemir, A. V., & Çol, K. B. (2022). Uses of complementary therapy in symptom management of cancer patients who receive chemotherapy. Sağlık Akademisyenleri Dergisi, 9(3), 211-219. https://doi.org/10.52880/sagakaderg.1045498
  • Reinhardt, L., Steeb, T., Mifka, A., Berking, C., & Meier, F. (2023). Quality, understandability and reliability of YouTube videos on skin cancer screening. Journal of Cancer Education, 38(5), 1667-1674. https://doi.org/10.1007/s13187-023-02320-w
  • Rodriguez Rodriguez, A. M., Blanco-Díaz, M., Lopez Diaz, P., de la Fuente Costa, M., Dueñas, L., Escobio Prieto, I., Calatayud, J., & Casaña, J. (2022). Quality analysis of YouTube videos presenting shoulder exercises after breast cancer surgery. Breast Care (Basel), 17(2), 188-198. https://doi.org/10.1159/000518265
  • Sahin, A. N., Sahin, A. S., Schwenter, F., & Sebajang, H. (2019). YouTube videos as a source of information on colorectal cancer: What do our patients learn? Journal of Cancer Education, 34(6), 1160-1166. https://doi.org/10.1007/s13187-018-1422-9
  • Sahin, E., & Seyyar, M. (2023). Assessing the scientific quality and reliability of YouTube videos about chemotherapy. Medicine, 102(45), e35916. https://doi.org/10.1097/MD.0000000000035916
  • Semerci, R., Şimşek, E., Savaş, E., Orhan, E., & Erbey, F. (2023). The quality and content analysis of YouTube videos about chemotherapy for children. Pediatric Blood & Cancer, 70(3), e30865. https://doi.org/10.1002/pbc.30865
  • Tang, W., Olscamp, K., Choi, S. K., & Friedman, D. B. (2017). Alzheimer's disease in social media: Content analysis of YouTube videos. Interactive Journal of Medical Research, 6(2), e19. https://doi.org/10.2196/ijmr.8612
  • Tosun, H., & Tosun, A. (2022). An information source for blood pressure measurement: YouTube analysis. Turkish Journal of Cardiovascular Nursing, 13(30), 28-35. https://doi.org/10.5543/khd.2022.212437
  • Van Dongen, S. I., de Nooijer, K., Cramm, J. M., Francke, A. L., Oldenmenger, W. H., Korfage, I. J., Witkamp, F. E., Stoevelaar, R., van der Heide, A., & Rietjens, J. A. (2020). Self-management of patients with advanced cancer: A systematic review of experiences and attitudes. Palliative Medicine, 34(2), 160-178. https://doi.org/10.1177/0269216319883976
  • Wittenberg-Lyles, E., Parker Oliver, D., Demiris, G., Swarz, J., & Rendo, M. (2014). YouTube as a tool for pain management with informal caregivers of cancer patients: A systematic review. Journal of Pain and Symptom Management, 48(6), 1200-1210. https://doi.org/10.1016/j.jpainsymman.2014.02.015
  • Wong, N., & Ingledew, P. A. (2024). The quality of YouTube videos on radiotherapy and prostatectomy for prostate cancer. Canadian Urological Association Journal, 18(2), 61-66. https://doi.org/10.5489/cuaj.8523
  • World Health Organization, International Agency for Research on Cancer (IARC). (2023). Global cancer observatory. Retrieved February 14, 2023, from https://gco.iarc.who.int/media/globocan/factsheets/populations/900-world-fact-sheet.pdf

Kemoterapi Yan Etkileri ve Youtube Platformu; Hastalar Ne İzliyor?

Yıl 2025, Cilt: 6 Sayı: 1, 110 - 121, 30.04.2025

Nilay Bektaş Akpınar , Ulviye Özcan Yüce , Assoc. Prof. Cagrı Gumus , Eda Sezerer Albayrak , Esen Mallı

https://doi.org/10.59244/ktokusbd.1638485

Öz

Amaç: Bu araştırma ülke örnekleminde Kemoterapinin Yan etkilerinin anlatıldığı YouTube videolarının içeriği, niceliği ve güvenirliğini değerlendirmek amacıyla yapılmıştır.
Gereç ve Yöntem: YouTube'da 29 Ağustos 2022 tarihinde arama çubuğuna ‘kemoterapinin yan etkileri’ anahtar kelimesi kullanılarak taranmıştır. Sıralama kriteri olarak “Alaka Tabanlı Sıralama” uygulanmıştır. Kemoterapi yan etkileri ile ilgili olmayan, Türkçe dışındaki diller, sesi olmayan, tekrarlı ve 20 dakikadan uzun videolar değerlendirmeye alınmadı(n=23). 0-20 dakika arasındaki videolar incelendi. 0-20 dakika arasındaki 55 video Tüketici Sağlığı Bilgileri için Kalite Kriterleri Ölçeği (Quality Criteria for Consumer Health Information -DISCERN) ve Global Quality Scale (GQS) kullanılarak 3 ayrı bağımsız uzman tarafından eş zamanlı değerlendirilmiştir.
Bulgular: En yaygın üç yükleyici profilin doktor, hasta ve sağlıkla ilgili web siteleri olduğu belirlendi. Videoların içeriklerinin büyük bir kısmını kemoterapi ve yan etkiler, hasta deneyimleri oluşturdu. DISCERN puan ortalaması 56, GQS ise 3.00 olarak belirlenmiştir. Video yükleyiciler ile puanlar karşılaştırıldığında DISCERN (p=0.245), GQS (p=0.647) olup puanları arasında anlamlı fark olmadığı saptandı. Video süresi, beğenilme ve yorum sayısı, yorum oranında gruplar arasında anlamlı fark saptandı (sırasıyla p=0.001, 0.049, 0.004, 0.003).
Sonuç: Sonuç olarak videolardaki bilgilerin kalitesinin iyi, eğitimsel değerinin orta düzeyde olduğu; hastalar tarafından yüklenen videoların daha fazla izlenildiği, daha çok beğeni aldığı ve daha sık görüntülendiği belirlenmiştir.

Anahtar Kelimeler

kanser kemoterapi yan etkileri e-sağlık hasta YouTube

Kaynakça

  • Alexa. (2022). The top 500 sites on the web. Retrieved from https://www.alexa.com/topsites Auxier, B., & Anderson, M. (2021). Social media use in 2021. Pew Research Center. Retrieved from https://www.pewresearch.org/internet/2021/04/07/social-media-use-in-2021/
  • Azer, S. A. (2020). Are DISCERN and JAMA suitable instruments for assessing YouTube videos on thyroid cancer? Journal of Cancer Education, 35, 1267–127. https://doi.org/10.1007/s13187-020
  • Behranvand, N., Nasri, F., Zolfaghari Emameh, R., Khani, P., Hosseini, A., Garssen, J., & Falak, R. (2022). Chemotherapy: A double-edged sword in cancer treatment. Cancer Immunology, Immunotherapy, 71(3), 507-526. https://doi.org/10.1007/s00262-021-03013-3
  • Bernard, A., Langille, M., Hughes, S., Rose, C., Leddin, D., & Veldhuyzen van Zanten, S. A. (2007). A systematic review of patient inflammatory bowel disease information resources on the World Wide Web. The American Journal of Gastroenterology, 102(9), 2070-2077. https://doi.org/10.1111/j.1572-0241.2007.01325.x
  • Biggs, T. C., Bird, J. H., Harries, P. G., & Salib, R. J. (2013). YouTube as a source of information on rhinosinusitis: The good, the bad and the ugly. The Journal of Laryngology & Otology, 127(8), 749-754. https://doi.org/10.1017/S0022215113001473
  • Coolbrandt, A., Dierckx de Casterlé, B., Wildiers, H., Aertgeerts, B., Van der Elst, E., van Achterberg, T., & Milisen, K. (2016). Dealing with chemotherapy-related symptoms at home: A qualitative study in adult patients with cancer. European Journal of Cancer Care (Engl), 25(1), 79-92. https://doi.org/10.1111/ecc.12303
  • Dadkhah, M., Mehraeen, M., Rahimnia, F., & Kimiafar, K. (2021). Use of Internet of Things for chronic disease management: An overview. Journal of Medical Signals and Sensors, 24(2), 138-157. https://doi.org/10.4103/jmss.JMSS_13_20
  • DISCERN—General instructions. (n.d.). Retrieved September 2, 2022, from www.discern.org.uk Guo, P., Kim, J., & Rubin, R. (2014). How video production affects student engagement: An empirical study of MOOC videos. In Proceedings of the first ACM conference on Learning at scale conference (pp. 41-50). https://doi.org/10.1145/2556325.2566239
  • Hassona, Y., Taimeh, D., Marahleh, A., & Scully, C. (2016). YouTube as a source of information on mouth (oral) cancer. Oral Diseases, 22(3), 202-208. https://doi.org/10.1111/odi.12434
  • Kaşıkçı, M. T., & Yıldırım, S. (2021). Analysing YouTube videos as a source for Alzheimer's disease information. Medical Journal of Mugla Sitki Kocman University, 8(3), 215-219. https://doi.org/10.47572/muskutd.1001545
  • Lewandowski, D. (2008). Search engine user behaviour: How can users be guided to quality content? Information Services & Use, 28(3), 261-268. https://doi.org/10.3233/ISU-2008-0583
  • Madathil, K. C., Rivera-Rodriguez, A. J., Greenstein, J. S., & Gramopadhye, A. K. (2015). Healthcare information on YouTube: A systematic review. Health Informatics Journal, 21(3), 173-194. https://doi.org/10.1177/1460458213512220
  • Magalhães, B., Fernandes, C., Lima, L., Martinez-Galiano, J. M., & Santos, C. (2020). Cancer patients' experiences on self-management of chemotherapy treatment-related symptoms: A systematic review and thematic synthesis. European Journal of Oncology Nursing, 49, 101837. https://doi.org/10.1016/j.ejon.2020.101837
  • Osman, W., Mohamed, F., Elhassan, M., & Shoufan, A. (2022). Is YouTube a reliable source of health-related information? A systematic review. BMC Medical Education, 22, 382. https://doi.org/10.1186/s12909-022-03446-z
  • Ozdemir, B., Unubol, O. T., & Akyuz, G. (2022). Is YouTube a high-quality source of information on cancer rehabilitation? Journal of Cancer Survivorship, 16(5), 1016-1022. https://doi.org/10.1007/s11764-021-01093-9
  • Pekmezci, P. H., Köse, G. B., Akbal, Y., Özdemir, A. V., & Çol, K. B. (2022). Uses of complementary therapy in symptom management of cancer patients who receive chemotherapy. Sağlık Akademisyenleri Dergisi, 9(3), 211-219. https://doi.org/10.52880/sagakaderg.1045498
  • Reinhardt, L., Steeb, T., Mifka, A., Berking, C., & Meier, F. (2023). Quality, understandability and reliability of YouTube videos on skin cancer screening. Journal of Cancer Education, 38(5), 1667-1674. https://doi.org/10.1007/s13187-023-02320-w
  • Rodriguez Rodriguez, A. M., Blanco-Díaz, M., Lopez Diaz, P., de la Fuente Costa, M., Dueñas, L., Escobio Prieto, I., Calatayud, J., & Casaña, J. (2022). Quality analysis of YouTube videos presenting shoulder exercises after breast cancer surgery. Breast Care (Basel), 17(2), 188-198. https://doi.org/10.1159/000518265
  • Sahin, A. N., Sahin, A. S., Schwenter, F., & Sebajang, H. (2019). YouTube videos as a source of information on colorectal cancer: What do our patients learn? Journal of Cancer Education, 34(6), 1160-1166. https://doi.org/10.1007/s13187-018-1422-9
  • Sahin, E., & Seyyar, M. (2023). Assessing the scientific quality and reliability of YouTube videos about chemotherapy. Medicine, 102(45), e35916. https://doi.org/10.1097/MD.0000000000035916
  • Semerci, R., Şimşek, E., Savaş, E., Orhan, E., & Erbey, F. (2023). The quality and content analysis of YouTube videos about chemotherapy for children. Pediatric Blood & Cancer, 70(3), e30865. https://doi.org/10.1002/pbc.30865
  • Tang, W., Olscamp, K., Choi, S. K., & Friedman, D. B. (2017). Alzheimer's disease in social media: Content analysis of YouTube videos. Interactive Journal of Medical Research, 6(2), e19. https://doi.org/10.2196/ijmr.8612
  • Tosun, H., & Tosun, A. (2022). An information source for blood pressure measurement: YouTube analysis. Turkish Journal of Cardiovascular Nursing, 13(30), 28-35. https://doi.org/10.5543/khd.2022.212437
  • Van Dongen, S. I., de Nooijer, K., Cramm, J. M., Francke, A. L., Oldenmenger, W. H., Korfage, I. J., Witkamp, F. E., Stoevelaar, R., van der Heide, A., & Rietjens, J. A. (2020). Self-management of patients with advanced cancer: A systematic review of experiences and attitudes. Palliative Medicine, 34(2), 160-178. https://doi.org/10.1177/0269216319883976
  • Wittenberg-Lyles, E., Parker Oliver, D., Demiris, G., Swarz, J., & Rendo, M. (2014). YouTube as a tool for pain management with informal caregivers of cancer patients: A systematic review. Journal of Pain and Symptom Management, 48(6), 1200-1210. https://doi.org/10.1016/j.jpainsymman.2014.02.015
  • Wong, N., & Ingledew, P. A. (2024). The quality of YouTube videos on radiotherapy and prostatectomy for prostate cancer. Canadian Urological Association Journal, 18(2), 61-66. https://doi.org/10.5489/cuaj.8523
  • World Health Organization, International Agency for Research on Cancer (IARC). (2023). Global cancer observatory. Retrieved February 14, 2023, from https://gco.iarc.who.int/media/globocan/factsheets/populations/900-world-fact-sheet.pdf
Toplam 27 adet kaynakça vardır.

Ayrıntılar

Birincil Dil İngilizce
Konular Dahili Hastalıklar Hemşireliği, Sağlık Hizmetleri ve Sistemleri (Diğer)
Bölüm Araştırma Makaleleri
Yazarlar

Nilay Bektaş Akpınar 0000-0003-4142-6457

Ulviye Özcan Yüce 0000-0002-7389-7803

Assoc. Prof. Cagrı Gumus 0000-0001-5901-9708

Eda Sezerer Albayrak 0000-0002-2195-0772

Esen Mallı 0000-0002-2586-605X

Yayımlanma Tarihi 30 Nisan 2025
Gönderilme Tarihi 12 Şubat 2025
Kabul Tarihi 16 Mart 2025
Yayımlandığı Sayı Yıl 2025 Cilt: 6 Sayı: 1

Kaynak Göster

APA Bektaş Akpınar, N., Özcan Yüce, U., Gumus, A. P. C., Sezerer Albayrak, E., vd. (2025). Chemotherapy Side Effects and Youtube Platform; What do Patients Watch?. KTO Karatay Üniversitesi Sağlık Bilimleri Dergisi, 6(1), 110-121. https://doi.org/10.59244/ktokusbd.1638485
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