Araştırma Makalesi
BibTex RIS Kaynak Göster
Yıl 2025, Cilt: 1 Sayı: 2, 43 - 53, 27.05.2025

Öz

Kaynakça

  • American Academy of Paediatrics. (2003). Family-centered care and the paediatrician's role. Paediatrics, 112(3), 691-696.
  • Arango, P. (2011). Family-Centered Care. Academic Paediatrics, 11, 97-99.
  • Aronson, P.L., Yau, J., Helfaer, M.A., & Morrison, W. (2009). Impact of family presence during paediatric ICUs rounds on the family and medical team. Paediatrics, 124, 1119-1125.
  • Benzein, E., Johansson, P., Arestedt, K. F., & Saveman, B. (2008). Nurses’ attitudes about the importance of families in nursing care. Journal of Family Nursing, 14, 162-180.
  • Blake, F. G. (1954). The child, his parents, and the nurse. Philadelphia: J.B. Lippincott
  • Boztepe, H., & Kerimoğlu-Yıldız, G. (2017). Nurses perceptions of barriers to implementing family-centered care in a paediatric setting: a qualitative study. J Spec Pediatr Nurs.,1-8.
  • Braun, V., Clarke, V., 2006. Using thematic analysis in psychology. Qual. Res. Psychol., 3(2), 77–101.
  • Butler, A., Copnell, B., & Willetts, G. (2014). Family‐centred care in the paediatric ICUs: an integrative review of the literature. Journal of Clinical Nursing, 23(15-16), 2086-2100.
  • Cameron, M.A., Schleien, C.L., & Morris, M.C. (2009). Parental presence on paediatric ICUs rounds. Journal of Paediatrics, 155, 522–528.
  • Cohen, L., Manion, L., & Morrison, K. (2011). Research methods in education (7th ed.). New York: Routledge.
  • Corlett, T., & Twycross, A. (2006). Negotiation of parental roles within family centred care: a review of the research. Journal of Clinical Nursing, 15, 1308-1316.
  • Coyne, I. (2015). Families and health care professionals' perspectives and expectations of family centred care: hidden expectations and unclear roles. Health Expectations, 18, 796-808.
  • Erdoğan, S., Nahcivan, N., & Nihal, M.N. (2014). Hemşirelikte Araştırma Süreç, Uygulama ve Kritik. Nobel Kitap Evi.
  • Feeg, V. D., Paraszczuk, A. M., Çavuşoğlu, H., Shields, L., Pars, H., & Al Mamun, A. (2016). How is family centered care perceived by healthcare providers from different countries? An international comparison study. Journal of Paediatric Nursing, 31(3), 267-276.
  • Foster, M., Whitehead, L., & Maybee, P. (2010). Parents’ and health professionals’ perceptions of family centred care for children in hospital, in developed and developing countries: a review of the literature. International Journal of Nursing Studies, 47, 1184-1193.
  • Franck, L., & Spencer, C., (2003). Parent visiting and participation in infant care giving activities in a neonatal unit. Birth, 30 (1), 31e35.
  • Graneheim, U.H., & Lundman, B., (2004). Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ. Today 24, 105-112.
  • Hovey, R.B., Morck, A., Nettleton, S., Robin, S., Bullis, D., Findlay, A., & Massfeller, H. (2010). Partners in our care: patient safety from a patient perspective. Quality Safety Health Care, 19, 1–4.
  • Institute for Healthcare Improvement: Patient and family-centered care: overview. http://www.ihi.org/Topics/PFCC/Pages/Overview.aspx
  • Jacobowski, N. L., Girard, T. D., Mulder, J. A., & Ely, E. W. (2010). Communication in critical care: family rounds in the ICUs. American Journal of Critical Care, 19, 421-430.
  • Just, A. (2005). Parent participation in care: bridging the gap in the paediatric ICU. Newborn and Infant Nursing Reviews, 5,179-187.
  • Knafl, K.A., Cavallari, K.A., & Dixon, D. M. (1988). Paediatric hospitalization: family and nurse perspectives. Glenview, IL: Scott, Foresman and Company.
  • Kuo, D., Houtrow, A., Arango, P., Kuhlthau, K., Simmons, J., & Neff, J. (2012). Family-centered care: current applications and future directions in paediatric health care. Maternal and Child Health Journal, 16, 297-305.
  • Landry, M.A., Lafrenaye, S., Roy, M.C., Cyr, C. (2007). A randomized, controlled trial of bedside versus conference-room case presentation in a pediatric intensive care unit. Pediatrics, 120(2), 275-280.
  • Longtin, Y., Sax, H., Leape, L. L., Sheridan, S. E., Donaldso, L., and Pittet, D. (2010). Patient participation: current knowledge and applicability to patient safety. Mayo Clinic Proceedings, 85, 53-62.
  • Macdonald, M. E., Liben, S., & Carnevale, F. A. (2012). An office or a bedroom? Challenges for family-centered care in the pediatric intensive care unit. Journal of Child HealthCare, 16, 237-249.
  • MacKay, L.J., & Gregory, D. (2011). Exploring family-centered care among paediatric oncology nurses. Journal of Paediatric Oncology Nursing, 28, 43-52.
  • Macnab, A.J., Thiessen. P., McLeod, E., & Hinton, D. (2000). Parent assessment of family centered care practices in a children’s hospital. Child Health Care, 29, 113-128.
  • Maxton, F.J.C. (1997). Old habits die hard: changing paediatric nurses’ perceptions of families in ICU. Intensive and Critical Care Nursing, 13, 145-150.
  • Matua, G.A., 2015. Choosing phenomenology as a guiding philosophy for nursing research. Nurse Res. 22(4), 30-34.
  • Meert, K.L., Clark, J., & Eggly, S. (2013). Family-centered care in the pediatric intensive care unit. Pediatr Clin North Am., 60(3), 761-772.
  • Meuthing, S.E., Kotagal, U.R., Schoettker, P.J., & Del Rey, J.G. (2007). Family-centered bedside rounds: a new approach to patient care and teaching. Paediatrics, 119, 829-832.
  • Neal, A., Frost, M., Kuhn, J., Gren, A., Gance-Cleveland, B., & Kertsen, R. (2007). Family centered care within an infant–toddler unit. Paediatric Nursing, 33, 481-485.
  • Petersen, M., Cohen, J., & Parsons, V. (2004). Family-centered care: do we practice what we preach? Journal of Obstetric, Gynecology and Neonatal Nursing, 33, 421-427.
  • Richards, C.A., Starks, H., O’Connor, M.R., & Doorenbos, A.Z. (2017). Elements of family-centered care in the paediatric ICUs: an integrative review. Journal of hospice and palliative nursing. The official Journal of the Hospice and Palliative Nurses Association, 19(3), 238.
  • Roden, J. (2005). The involvement of parents and nurses in the care of acutely-ill children in a non-specialist paediatric setting. Journal of Child Health Care, 9, 222-240.
  • Saunders, R., Abraham, M., Crosby, M., Thomas, K., & Edwards, W. (2003). Evaluation and development of potentially better practices for improving family-centred care in neonatal ICUs. Paediatrics, 111 (4), 437-449.
  • Shields, L., Pratt, J., & Hunter, J. (2006). Family centered care: a review of qualitative studies. Journal of Clinical Nursing, 15, 1317-1323.
  • Shields, L., & Nixon, J. (2004). Hospital care of children in four countries. Journal of Advanced Nursing, 45, 475-486.
  • Sisterhen, L.L., Blaszak, R.T., Woods, M.B., & Smith, C.E. (2007). Defining family-centered rounds. Teaching and Learning in Medicine, 19(3), 319-322.
  • Subramony, A., Hametz, P.A., & Balmer, D. (2014). Family-centered rounds in theory and practice: an ethnographic case study. Academic Paediatrics, 14, 200-206.
  • Streubert, H.J., & Carpenter, D.R. (2011). Qualitative Research in Nursing: Advancing the Humanistic Imperative, fifth ed. Lippincott Williams & Wilkins, China.
  • Türk Kızılayı Göç ve Mülteci Hizmetleri Müdürlüğü (2017). 2017 Yılı Göç İstatistik raporu. https://www.kizilay.org.tr/Upload/Dokuman/Dosya/38492657_2017-yili-goc-istatistik-raporu -ocak-2018.pdf.
  • Tomlinson, P.S., Swiggum, P., & Harbaugh, B.L. (1999). Identification of nurse-family intervention sites to decrease health-related family boundary ambiguity in PICU. Issues in Comprehensive Pediatric Nursing, 22, 27-47.
  • Törüner, E. (ed.), Büyükgönenç, L. (ed.), Törüner, E., Büyükgönenç, L. (2011). Çocuk Sağlığı Hemşireliği: Çocuk Sağlığı Temel Hemşirelik Yaklaşımları. Gökçe Ofset, Ankara. ss: 172-182.
  • Wright, L.M., & Leahey, M. (1990). Trends in the nursing of families. Journal of Advanced Nursing, 15, 148-154.
  • Yıldırım, A., & Simsek, H. (2016). Sosyal Bilimlerde Nitel Araştırma Yöntemleri. Ankara, Türkiye: Seçkin Yayıncılık.

Family-Centered Care from the Perspective of Pediatric Intensive Care Nurses

Yıl 2025, Cilt: 1 Sayı: 2, 43 - 53, 27.05.2025

Öz

Background: Family-centered care has a vital importance for the children and families especially in specialized units such as pediatric intensive care clinics. While many studies investigate family-centered care in terms of pediatric care, few studies investigate the perspectives of pediatric intensive care nurses for family-centered care.
Objectives: The aim of this study was to explore the perspectives of nurses regarding the practice of family-centered care.
Methods: This was a qualitative study. Participations are nurses who were working in a pediatric intensive care unit of a hospital were included in the study. Using semi-structured interviews, data were collected from 12 participants. Each interview lasted for 30 to 60 minutes. Data were analyzed by using thematic content analysis.
Results: Three main themes and subthemes emerged following data analysis. First of main themes included children cannot be thought apart from their families. The second main theme included participation of the families is beneficial for everyone. The third main theme included the barriers and difficulties for family-centered care.
Conclusions: Nurses reported the benefits and difficulties association with the adoption of a family-centred care approach for children who were hospitalized in pediatric intensive care unit and their families. In the study, they emphasized that nurses required time to provide family-centered care effectively and it was necessary to raise specialized nurses to help them.

Kaynakça

  • American Academy of Paediatrics. (2003). Family-centered care and the paediatrician's role. Paediatrics, 112(3), 691-696.
  • Arango, P. (2011). Family-Centered Care. Academic Paediatrics, 11, 97-99.
  • Aronson, P.L., Yau, J., Helfaer, M.A., & Morrison, W. (2009). Impact of family presence during paediatric ICUs rounds on the family and medical team. Paediatrics, 124, 1119-1125.
  • Benzein, E., Johansson, P., Arestedt, K. F., & Saveman, B. (2008). Nurses’ attitudes about the importance of families in nursing care. Journal of Family Nursing, 14, 162-180.
  • Blake, F. G. (1954). The child, his parents, and the nurse. Philadelphia: J.B. Lippincott
  • Boztepe, H., & Kerimoğlu-Yıldız, G. (2017). Nurses perceptions of barriers to implementing family-centered care in a paediatric setting: a qualitative study. J Spec Pediatr Nurs.,1-8.
  • Braun, V., Clarke, V., 2006. Using thematic analysis in psychology. Qual. Res. Psychol., 3(2), 77–101.
  • Butler, A., Copnell, B., & Willetts, G. (2014). Family‐centred care in the paediatric ICUs: an integrative review of the literature. Journal of Clinical Nursing, 23(15-16), 2086-2100.
  • Cameron, M.A., Schleien, C.L., & Morris, M.C. (2009). Parental presence on paediatric ICUs rounds. Journal of Paediatrics, 155, 522–528.
  • Cohen, L., Manion, L., & Morrison, K. (2011). Research methods in education (7th ed.). New York: Routledge.
  • Corlett, T., & Twycross, A. (2006). Negotiation of parental roles within family centred care: a review of the research. Journal of Clinical Nursing, 15, 1308-1316.
  • Coyne, I. (2015). Families and health care professionals' perspectives and expectations of family centred care: hidden expectations and unclear roles. Health Expectations, 18, 796-808.
  • Erdoğan, S., Nahcivan, N., & Nihal, M.N. (2014). Hemşirelikte Araştırma Süreç, Uygulama ve Kritik. Nobel Kitap Evi.
  • Feeg, V. D., Paraszczuk, A. M., Çavuşoğlu, H., Shields, L., Pars, H., & Al Mamun, A. (2016). How is family centered care perceived by healthcare providers from different countries? An international comparison study. Journal of Paediatric Nursing, 31(3), 267-276.
  • Foster, M., Whitehead, L., & Maybee, P. (2010). Parents’ and health professionals’ perceptions of family centred care for children in hospital, in developed and developing countries: a review of the literature. International Journal of Nursing Studies, 47, 1184-1193.
  • Franck, L., & Spencer, C., (2003). Parent visiting and participation in infant care giving activities in a neonatal unit. Birth, 30 (1), 31e35.
  • Graneheim, U.H., & Lundman, B., (2004). Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ. Today 24, 105-112.
  • Hovey, R.B., Morck, A., Nettleton, S., Robin, S., Bullis, D., Findlay, A., & Massfeller, H. (2010). Partners in our care: patient safety from a patient perspective. Quality Safety Health Care, 19, 1–4.
  • Institute for Healthcare Improvement: Patient and family-centered care: overview. http://www.ihi.org/Topics/PFCC/Pages/Overview.aspx
  • Jacobowski, N. L., Girard, T. D., Mulder, J. A., & Ely, E. W. (2010). Communication in critical care: family rounds in the ICUs. American Journal of Critical Care, 19, 421-430.
  • Just, A. (2005). Parent participation in care: bridging the gap in the paediatric ICU. Newborn and Infant Nursing Reviews, 5,179-187.
  • Knafl, K.A., Cavallari, K.A., & Dixon, D. M. (1988). Paediatric hospitalization: family and nurse perspectives. Glenview, IL: Scott, Foresman and Company.
  • Kuo, D., Houtrow, A., Arango, P., Kuhlthau, K., Simmons, J., & Neff, J. (2012). Family-centered care: current applications and future directions in paediatric health care. Maternal and Child Health Journal, 16, 297-305.
  • Landry, M.A., Lafrenaye, S., Roy, M.C., Cyr, C. (2007). A randomized, controlled trial of bedside versus conference-room case presentation in a pediatric intensive care unit. Pediatrics, 120(2), 275-280.
  • Longtin, Y., Sax, H., Leape, L. L., Sheridan, S. E., Donaldso, L., and Pittet, D. (2010). Patient participation: current knowledge and applicability to patient safety. Mayo Clinic Proceedings, 85, 53-62.
  • Macdonald, M. E., Liben, S., & Carnevale, F. A. (2012). An office or a bedroom? Challenges for family-centered care in the pediatric intensive care unit. Journal of Child HealthCare, 16, 237-249.
  • MacKay, L.J., & Gregory, D. (2011). Exploring family-centered care among paediatric oncology nurses. Journal of Paediatric Oncology Nursing, 28, 43-52.
  • Macnab, A.J., Thiessen. P., McLeod, E., & Hinton, D. (2000). Parent assessment of family centered care practices in a children’s hospital. Child Health Care, 29, 113-128.
  • Maxton, F.J.C. (1997). Old habits die hard: changing paediatric nurses’ perceptions of families in ICU. Intensive and Critical Care Nursing, 13, 145-150.
  • Matua, G.A., 2015. Choosing phenomenology as a guiding philosophy for nursing research. Nurse Res. 22(4), 30-34.
  • Meert, K.L., Clark, J., & Eggly, S. (2013). Family-centered care in the pediatric intensive care unit. Pediatr Clin North Am., 60(3), 761-772.
  • Meuthing, S.E., Kotagal, U.R., Schoettker, P.J., & Del Rey, J.G. (2007). Family-centered bedside rounds: a new approach to patient care and teaching. Paediatrics, 119, 829-832.
  • Neal, A., Frost, M., Kuhn, J., Gren, A., Gance-Cleveland, B., & Kertsen, R. (2007). Family centered care within an infant–toddler unit. Paediatric Nursing, 33, 481-485.
  • Petersen, M., Cohen, J., & Parsons, V. (2004). Family-centered care: do we practice what we preach? Journal of Obstetric, Gynecology and Neonatal Nursing, 33, 421-427.
  • Richards, C.A., Starks, H., O’Connor, M.R., & Doorenbos, A.Z. (2017). Elements of family-centered care in the paediatric ICUs: an integrative review. Journal of hospice and palliative nursing. The official Journal of the Hospice and Palliative Nurses Association, 19(3), 238.
  • Roden, J. (2005). The involvement of parents and nurses in the care of acutely-ill children in a non-specialist paediatric setting. Journal of Child Health Care, 9, 222-240.
  • Saunders, R., Abraham, M., Crosby, M., Thomas, K., & Edwards, W. (2003). Evaluation and development of potentially better practices for improving family-centred care in neonatal ICUs. Paediatrics, 111 (4), 437-449.
  • Shields, L., Pratt, J., & Hunter, J. (2006). Family centered care: a review of qualitative studies. Journal of Clinical Nursing, 15, 1317-1323.
  • Shields, L., & Nixon, J. (2004). Hospital care of children in four countries. Journal of Advanced Nursing, 45, 475-486.
  • Sisterhen, L.L., Blaszak, R.T., Woods, M.B., & Smith, C.E. (2007). Defining family-centered rounds. Teaching and Learning in Medicine, 19(3), 319-322.
  • Subramony, A., Hametz, P.A., & Balmer, D. (2014). Family-centered rounds in theory and practice: an ethnographic case study. Academic Paediatrics, 14, 200-206.
  • Streubert, H.J., & Carpenter, D.R. (2011). Qualitative Research in Nursing: Advancing the Humanistic Imperative, fifth ed. Lippincott Williams & Wilkins, China.
  • Türk Kızılayı Göç ve Mülteci Hizmetleri Müdürlüğü (2017). 2017 Yılı Göç İstatistik raporu. https://www.kizilay.org.tr/Upload/Dokuman/Dosya/38492657_2017-yili-goc-istatistik-raporu -ocak-2018.pdf.
  • Tomlinson, P.S., Swiggum, P., & Harbaugh, B.L. (1999). Identification of nurse-family intervention sites to decrease health-related family boundary ambiguity in PICU. Issues in Comprehensive Pediatric Nursing, 22, 27-47.
  • Törüner, E. (ed.), Büyükgönenç, L. (ed.), Törüner, E., Büyükgönenç, L. (2011). Çocuk Sağlığı Hemşireliği: Çocuk Sağlığı Temel Hemşirelik Yaklaşımları. Gökçe Ofset, Ankara. ss: 172-182.
  • Wright, L.M., & Leahey, M. (1990). Trends in the nursing of families. Journal of Advanced Nursing, 15, 148-154.
  • Yıldırım, A., & Simsek, H. (2016). Sosyal Bilimlerde Nitel Araştırma Yöntemleri. Ankara, Türkiye: Seçkin Yayıncılık.
Toplam 47 adet kaynakça vardır.

Ayrıntılar

Birincil Dil İngilizce
Konular Çocuk Sağlığı ve Hastalıkları Hemşireliği
Bölüm Research Article
Yazarlar

Çiğdem Gök 0000-0003-0367-6981

Türkan Turan 0000-0002-8427-672X

Yayımlanma Tarihi 27 Mayıs 2025
Gönderilme Tarihi 24 Eylül 2024
Kabul Tarihi 4 Mart 2025
Yayımlandığı Sayı Yıl 2025 Cilt: 1 Sayı: 2

Kaynak Göster

APA Gök, Ç., & Turan, T. (2025). Family-Centered Care from the Perspective of Pediatric Intensive Care Nurses. Northern Journal of Health Sciences, 1(2), 43-53.